From engaging publics to engaging knowledges: Enacting “appropriateness” in the Austrian biobank infrastructure

Goisauf, Melanie and Durnova, Anna ORCID: https://orcid.org/0000-0001-5789-1850 (2019) From engaging publics to engaging knowledges: Enacting “appropriateness” in the Austrian biobank infrastructure. Public Understanding of Science, 28 (3), pp. 275-289.

[img]
Preview
Text
PUS_goisauf_durnova.pdf - Submitted Version

Download (271kB) | Preview

Abstract or Table of Contents

While there is consensus on the essential importance of public engagement in further developments of biobanking, the related investigation of public views predominantly focused on the concerns expressed by the publics, and the concrete format of public engagement, without delving into the ways these concerns are constituted. In this paper, we synthetize recent research on public engagement in order to describe the constitution of respective concerns as ‘engagement of knowledges’. By shifting from ‘publics’ to ‘knowledges’, we draw attention to the interaction dynamic through which citizens embed the new knowledge they receive during expert interactions into the stock of knowledge they already possess. Analyzing our recent investigation of public views on biobanking in the form of citizen-expert panels (CEPs) in the Austrian infrastructure of biobanks (BBMRI.at), we trace this dynamic through citizens’ recurrent concerns that the research and consent practices related to biobanking should be “appropriate”.

Item Type: Article in Academic Journal
Keywords: Biobanks; Data; Informed Consent; Public Engagement; Trust
Research Units: Techno-Science and Societal Transformation
Status: Published
Date Deposited: 17 Oct 2018 09:27
Last Modified: 14 Mar 2019 13:26
Identification Number or DOI: 10.1177/0963662518806451
ISSN: 0963-6625
URI: https://irihs.ihs.ac.at/id/eprint/4548

Actions (login required)

View Item View Item